CME Info – Children’s National Rare Disease

Rare Disease for Primary Care Providers: A Short Course to Equip and Serve Those Providing Care

ACKNOWLEDGEMENT

This activity is supported by an educational grant from the Chan Zuckerberg Initiative.

TUITION

Complimentary

JOINT ACCREDITATION STATEMENT

In support of improving patient care, this activity has been planned and implemented by the Postgraduate Institute for Medicine, PlatformQ Health Education, LLC, and Children’s National Hospital. Postgraduate Institute for Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

LIVE CREDIT DESIGNATION STATEMENTS – July 27, 2022

PHYSICIAN CREDIT DESIGNATION STATEMENT

The Postgraduate Institute for Medicine designates this live activity for a maximum of 2.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

CONTINUING DIETICIAN EDUCATION

This program offers 2 CPEUs for dieticians.

INTERPROFESSIONAL CONTINUING EDUCATION

This activity was planned by and for the healthcare team, and learners will receive 2 Interprofessional Continuing Education (IPCE) credit for learning and change.

ENDURING CREDIT DESIGNATION STATEMENTS – July 27, 2022 to July 27, 2024

PHYSICIAN CREDIT DESIGNATION STATEMENT

The Postgraduate Institute for Medicine designates this enduring material for a maximum of 4 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

CONTINUING DIETICIAN EDUCATION

This program offers 4 CPEUs for dieticians.

INTERPROFESSIONAL CONTINUING EDUCATION

This activity was planned by and for the healthcare team, and learners will receive 4 Interprofessional Continuing Education (IPCE) credit for learning and change.

DATE OF RELEASE/EXPIRATION

Live Activity
Wednesday, July 27, 2022
2:00-3:00 pm ET: Creation of a Patient-centered, Medical Rare Disease Home
3:00-4:00 pm ET: Support Mechanisms for Providers of Rare Disease Care

Enduring Material
The enduring material will be available from July 27, 2022 to July 27, 2024.

Rare Disease Diagnosis and Testing Strategies

Culturally Competent Care in your Community

Creation of a Patient-centered, Medical Rare Disease Home

Support Mechanisms for Providers of Rare Disease Care

LEARNING OBJECTIVES

At the conclusion of this activity, participants will be able to:

Increase knowledge of genetic and non-genetic testing for the patient undergoing a diagnostic odyssey

Understand the role of genetic testing in the diagnostic process for rare disease patients

Communicate with rare disease families in a way that shows that they have access to a medical home that understands their unique medical and psychosocial needs

Understand unique needs of underrepresented minority populations in rare disease care

Accept that every care provider can feel emotions of insufficiency, sadness, or frustration when managing rare disease patients

TARGET AUDIENCE

The intended audience for this activity are physicians, advanced practice providers (NPs and PAs), pharmacists, dietitians, and other health care providers who care for rare disease patients.

ESTIMATED TIME TO COMPLETE

Live activity – 2 hours
Enduring activity – 4 hours

METHOD OF PARTICIPATION

There are no fees to participate in this activity. To participate in the activity, go to www.ClinicalSeriesLive.com. To receive credit, participants must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credit™, participants must receive a minimum score of 70% on the post-test.

HARDWARE/SOFTWARE REQUIREMENTS

Participants will need a computer with a recent version of Adobe Flash installed, as well as an internet connection sufficient for streaming media.

DISCLOSURE OF CONFLICTS OF INTEREST

Postgraduate Institute for Medicine (PIM) requires faculty, planners, and others in control of educational content to disclose all their financial relationships with ineligible companies. All identified conflicts of interest (COI) are thoroughly vetted and mitigated according to PIM policy. PIM is committed to providing its learners with high quality accredited continuing education activities and related materials that promote improvements or quality in healthcare and not a specific proprietary business interest of an ineligible company.

The faculty reported the following relevant financial relationships with ineligible entities related to the educational content of this CE activity:

Name of Faculty or Presenter	Reported Financial Relationship
Debra Regier, MD PhD Medical Director Children’s National Hospital	Has nothing to disclose.
Sarah Viall, MSN Assistant Professor, Department of Molecular and Medical Genetics Program Director, Clinical Metabolic Genetics Oregon Health & Science University (OHSU)	Has nothing to disclose.
Maura Katharine Carroll, MD Physician, Ashburn Pediatrics Loudon Medical Group	Has nothing to disclose.
Nicholas Ah Mew, MD Director, Inherited Metabolic Disorders Program, Rare Disease Institute, Children’s National Hospital Associate Professor of Pediatrics, The George Washington University	Grant/Research Support: Recordati Rare Diseases, Aeglea Biotherapeutics, Hemoshear Therapeutics Consultant/Advisory Board: Satellite Bio, Ultragenyx, Unicyte Bio
Leah R. Fleming, MD St Luke’s Health System Boise, ID	Has nothing to disclose.
Kimberly A. Chapman, MD, PhD Director, Adult Medicine Children’s National Rare Disease Institute	Other: HemoShear Therapeutics provides my employer a portion of my salary to reimburse for the time I spend as a national PI in the HST5040 clinical trials
Eduardo Fox, MD Pediatrician, Primary Care Medical Director, Pediatric Health Network Assistant Clinical Professor Children’s National Hospital George Washington University School of Medicine and Health Sciences	Has nothing to disclose.
Danielle Starin, MS, RD Metabolic Dietitian Children’s National Hospital, Rare Disease Institute	Speakers Bureau/Honoraria for non-CME: Ultragenyx, Biomarin Consultant/Advisory Board: Aeglea, Hemoshear
Deborah Bilder, MD Professor, Department of Psychiatry Division of Child & Adolescent Psychiatry University of Utah Huntsman Mental Health Institute Neurobehavior HOME Program	Employee Owner: Resero, LLC (owner) Consultant/Advisory Board: Biomarin Pharmaceuticals (Phase 3 Clinical Trial Steering Committee Member, consultant), Synlogic Therapeutics (consultant), Encoded Therapeutics (consultant), Taysha Gx (Scientific Advisory Board Member)
Jaime L. Fraser, MD, PhD Director, Myelin Disorders Program Director, Fetal Genetics Assistant Professor of Pediatrics Rare Disease Institute Children’s National Hospital Department of Pediatrics George Washington University	Grant Research/Support: Travere Therapeutics: Clinical Trial Site
Jenifer Jones-Dees, MD, FAAP Pediatrician IMA Healthcare	Has nothing to disclose.
Christine Maccia, MS, CGC Genetic Counselor Children’s National Hospital	Has nothing to disclose.
Carla Cheatham, MD Lead Trainer and Consultant Carla Cheatham Consulting Group, LLC	Has nothing to disclose.

The PIM planners and others have nothing to disclose. The PlatformQ Health Education, LLC and Children’s National Hospital planners and others have nothing to disclose.

DISCLOSURE OF UNAPPROVED/OFF LABEL USE:

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

DISCLAIMER:

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

CONTACT INFORMATION

Accreditation Support:
If you have questions regarding the certification of this activity, please contact PIM via email at inquiries@pimed.com.

Technical Support:
For any technical issues or issues with your CME Certificate, please contact ClinicalSeriesLive.com at 877-394-1306 or at Support@ClinicalSeriesLive.com.